Rare Disorders
Roughly 7,000 rare diseases/disorders have been identified as affecting the human race. Because they are rare, it can be a real challenge for a person to be accurately diagnosed. Finding effective treatments, especially medicine, can also be a challenge—and for the same reason: rareness.
Some students with rare disorders may require services under IDEA and special education depending on how it affects their ability to access their education. Since there is not a specific rare disorder category, the student would have to qualify under one of the thirteen specified categories.
Text thanks to: https://utahparentcenter.org/disabilities/ohi/ and Center for Parent Information and Resources
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“GARD is a public health program of the National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) that provides health information about rare diseases for the public. We recently launched this updated version of the GARD website, and some of the pages and features are still in development. We will continue to add and improve content over time. You can help us make the website better by providing feedback using the feedback form. “
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“Genetic Alliance, a non-profit organization founded in 1986, is a leader in deploying high tech and high touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health.”